We provide independent advocacy, education, navigation, and oversight so families are informed, supported, and never left to face hospice alone.
Six Core Programs
Hospice Advocacy Center–Eileen’s Voice provides an integrated system of advocacy, education, and accountability. Families can engage individual programs based on their immediate needs—gaining foundational knowledge, preparing for important conversations, or addressing care concerns. Together, these programs provide continuity, support, and systemic oversight while advancing transparency and quality across hospice care.
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The Education Program equips families with clear, accessible information about hospice care, patient rights, services, and expectations. This includes guidance on visit frequency, care standards, supply entitlements, communication pathways, and what families should expect during each stage of hospice.
Education materials also cover caregiver responsibilities, emergency protocols, medication expectations, and durable medical equipment (DME) coverage and standards.
The program is delivered through workshops, printed and digital resources, caregiver rights guides, and community-based outreach.
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The Navigation Program provides practical, non-clinical guidance to individuals and families who are entering, actively receiving, or transitioning within hospice care. Navigation helps families understand hospice processes, organize their questions and concerns, prepare for care team interactions, and identify appropriate next steps throughout the hospice care journey.
Navigation does not provide medical care, legal advice, or crisis intervention. Questions about whether hospice is appropriate for a loved one or how hospice works in general principle are addressed through the Education Program.
Navigation & Advocacy Support also includes real-time meeting participation (“voice-in-the-room” support), structured communication coaching, and practical tools that strengthen families’ ability to advocate constructively and confidently.
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The Oversight Program independently monitors key aspects of hospice care, including communication consistency, responsiveness, supply distribution, adherence to care plans, and delivery of core services. Oversight includes structured documentation of concerns, tracking visit frequency, monitoring communication responsiveness, identifying gaps early, and supporting families in escalating issues effectively and safely.
Our Six Core Programs
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The Data & Accountability Program collects de-identified information from consenting family experiences, including care inconsistencies, response delays, supply issues, symptom management patterns, and provider communication challenges. This data informs internal quality tracking and supports policy analysis, trend identification, and system-level insights.
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The Family Support Program provides emotional and practical support to caregivers throughout the hospice journey. Families facing serious illness often encounter unexpected developments, distressing moments, and difficult decisions. This program offers steady guidance, structured support during challenging situations, and connection to trusted community-based resources.
Family Support helps reduce caregiver burden, strengthen confidence, and provide stability during times of uncertainty. Support is available before hospice begins, during active care, and following a loved one’s passing.
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The Policy & System Reform Program advances evidence-based, nonpartisan analysis and structural improvements informed by documented patterns and research. Activities include publishing educational analyses, sharing findings with oversight bodies and stakeholders, and promoting transparency, accountability, and oversight integrity within hospice systems.